To inform and support individuals affected by cerebral cavernous malformations while facilitating improved diagnosis and management of the illness through education & support. The organization also promotes research into a cure and prevention of the disease.

Health , Public Health , Specifically Named Diseases

Family and scientific conferences conducted to diseminate information about ccm to those affected and their families. creation and maintenance of a patient registry to advocate, facilitate and participate in ccm research in the pursuit of a greater understanding of the disease. performance of community outreach, publication of newsletter, and maintenance of website to increase public awareness, provide support, and build a broad base of research funding resources.